All is well with the babes right now. Zoe is completely off her nitric oxide and yesterday's echocardiogram came back showing minimal to no signs of pulmonary hypertension. This is a great news b/c nitric oxide is one of the main PHT meds--and yesterday's results mean she really is doing great--all on her own. Her lung x-rays look fantastic too, in fact, her right lung, which was only 1/3 of it's proper size at birth, has filled almost all of the right side of her chest cavity! Like one of the docs told us the other day, she really is a little miracle baby.
We know she's not out of the woods yet. The next big steps involve closing her abdomen and getting her off the ventilator. Mom is much more anxious about this than dad, who is perfectly, and probably more appropriately, happy to be patient. It would be great if the docs could extibate her (take her off the ventilator) before the grandmothers get here (very soon!) but we'll take whatever we can get. If not before their first visit, then certainly for their second.
In the meantime, Zoe seems very happy. She especially loves it when her mom and dad come into the room and sit by her bedside. Even though she's on some pain meds and pretty well sedated, she always does her absolute best to open up her eyes and look at us whenever she hears our voices. Yesterday I think she was trying to say thank you to her daddy for always coming to see her, reading her bedtime stories, and kissing her goodnight every single night--no matter how late it is, how may hours he has already been at the hospital, or whether this requires him to take one more late night trip to the hospital in order to be at his daughters' bedsides.
Sadie is doing really well too, in fact, she gained two whole ounces yesterday! We are so happy about that. While I've mentioned that we get to do skin to skin with her every day, a lot of people have asked me what that means. The technical name for skin to skin is "kangaroo care," :) and it actually involves laying the baby right up against mom or dad's skin. Not only does skin to skin keep the babies really warm, but it helps them developmentally as well. It's not just good for babies though. As you can see from the photo, parents love it just as much . . . if not more, than their children.
8 comments:
Debbie! Tears. of. Joy. at seeing you holding your daughter. So wonderful and joyful. Glad at Zoe's progress and Sadie's too. Thinking of you guys.
XOXO
So glad to hear the good news...
That picture of you and Sadie is priceless!!
We are thinking of you 4 every day!! :)
XOXO
I have to say Deb/Rich, I cried tears of Joy after reading this. I honestly believe that while the machines and medicine are certainly helping your precious babies, the voices & love they feel from Mommy & Daddy are making them stronger every day!! I have been following the girls progress and am so happy for you both. I will continue to keep them in our thoughts and prayers! Love you guys!
Jen Firman
No words are necessary to express the love that you have for your baby girl...this picture says it all! It is so very precious!
Big Hugs & Lots of Love ~ xoxo
I also have tears of joy for you and your beautiful family! I love the photos and am so glad for the good news!!! Come on girls... keep it up!!!
Debi, you are doing great. Hang on to those moments like kangaroo care to get you through the others. I think your little girls are strong, just like you.
How yummy they are!!!
This journey is incredible and appreciate you keeping us posted. I'm addicted to this blog!!
Tons of love and positive vibes from the Burmans!
XOXOXOXO
Your girls are beautiful. I found your blog through Ruby's. Many prayers both your girls continue those baby steps in getting stronger and closer to coming home with you. Also wanted to let you know of a support group for families affected by CDH. CHERUBS is a wonderful group and we are here for you if you have questions, need support, or just want to share the joys of your precious girls' milestones. The link is www.cdhsupport.org
Keep fighting Zoe and Sadie and amaze your mommy and daddy,
Tracy Meats, mom to Ian, born with a LCDH on 4/3/04
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